Does your child have a
DIsorder of the Corpus Callosum?
If your child has been diagnosed with Agenesis, Dysgenesis, or Hypoplasia of the Corpus Callosum, and you would like to participate in research, register now to be included in the study.
Introduction to the
DCC Studies of Infants & Children
Our Goal:
We are seeking better ways to help children with disorders of the corpus callosum (DCC) grow to their full potential by studying mental and behavioral development in infants and children with DCC.
DCC Infant Study / DCC CHILD Study
How These Studies Work
Who Can Participate?
The parent or primary caregiver of a child who is:
- Diagnosed with Agenesis,
Dysgenesis or Hypoplasia of the Corpus Callosum. - Under 18 years of age.
The parent or primary caregiver must be 18 or older and must be able to read, understand, and complete forms in English.
Participants will need to provide
- Information about the
child’s development and their parent well-being via online surveys and phone-based interviews, at up to 6 timepoints before
the child turns four & annually thereafter up to 18 years of age - Copies of the child’s brain
scans and/or diagnostic
reports.
Participants will Receive
- Updates on published findings from these studies.
- Invitations for associated studies.
- DCC Infant Study participants may be invited for direct behavioral assessment at University of Minnesota.
- DCC Infant Study participants will receive financial compensation at each timepoint.