Does your child have
Dygenesis of the Corpus Callosum?
If your child has been diagnosed with Dysgenesis, Agenesis or Hypoplasia of the Corpus Callosum, and you would like to participate in research, register now to be included in the study.
Introduction to the
DCC Infant & Child Study
Our Goal:
We are seeking better ways to help children with DCC grow to their full potential by studying mental and behavioral development in infants and children with DCC.
DCC Infant Study
How it Works
Who Can Participate?
The parent or primary caregiver of a child who is:
- Less than 15 months old.
- Diagnosed with Agensis,
Dysgenesis or Hypoplasia of
the Corpus Callosum.
The parent or primary caregiver must be 18 or older and able to read, understand, and complete forms in English.
Participants will need to provide:
- Information about their
child’s development and their own
well-being via online surveys
and phone-based interviews,
at up to 6 timepoints before
the child turns four. - Copies of their child’s brain
scans and/or diagnostic
reports. - Saliva samples.
Infant Study Participants will Receive
- Financial compensation at
each time point. - Direct behavioral
assessment at University of
Minnesota, all travel
expenses paid (only
available for some
participants in North
America).